Yesodot Resources: Family Issues - Family Support and Advocacy. Yesodot provides family support, disability and special needs resources and information for Jewish families in the Greater Boston area.

Families often find it challenging to keep track of the many important pieces of information they send and receive relating to their loved one with disabilities. Two useful organizing tools are the Care Notebook
http://www.seattlechildrens.org/parents/special/notebook.htm and the Directions Notebook
www.mass.gov/dph/fch/directions.

Arc Massachusetts
Statewide educational,referral and advocacy organization on behalf of individuals with specific developmental disabilities, part of The Arc, a national organization.
http://www.arcmass.org/

Beach Center on Families
This Center performs research related to families and issues reports, for example on topics such as coping skills.
http://www.beachcenter.org/

Concord Spedpac Website
Comprehensive website with a lot of information. The information about IEP's and seeking professional help are particularly good. There is also a list of private evaluators.
http://www.concordspedpac.org/

Exceptional Parent Online
The website for Exceptional Parent magazine. Online articles and resources.
http://www.eparent.com

Family Village
Comprehensive general resource. A good first place to look for information on a topic.
http://www.familyvillage.wisc.edu

Federation for Children with Special Needs
The Mission of the Federation for Children with Special Needs is to provide information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. Advocacy workshops; the USDOE Monitoring Report on Massachusetts; Family Ties resource directory; legislative information and special education information; IEP forms; information on children with special health care needs; training information.
http://www.fcsn.org/home.htm

Ideal Lives
Extensive resources for parents and professionals, including parent tip section and book recommendations.
http://www.ideallives.com

Internet Resources for Special Children
Links to lots of disability-related information.
http://www.irsc.org

Massachusetts Association of Special Education Parent Advisory Councils (MASSPAC)
The Massachusetts Association of Special Education Parent Advisory Councils (MASSPAC), formerly known as PAC COALITION, is a growing grass roots organization for Special Education Parent Advisory Councils, parents and supporters across the Commonwealth.
http://www.masspac.org/

Massachusetts Families Organizing for Change
Leadership training, information and assistance.
http://www.communitygateway.org/mfofc

National Family Caregivers Association (NFCA)
http://www.thefamilycaregiver.org/

Massachusetts Family Voices
Part of a national organization advocating for children with special health care needs.
http://www.massfamilyvoices.org

NICHCY: National Information Center for Children and Youth With Disabilities
This Center has numerous fact sheets on specific disabilities, special education topics, disability awareness. A good first place to look for information.
http://www.nichcy.org

Ohio's FSC Getting Started Information
Although geared primarily for Ohio families, there is a lot of information on this site that will be of use to all families, particularly to those whose child has just been diagnosed.
http://www.state.oh.us/olrs/fsc/asp/GettingStarted.asp

Pacer Center
Parent information center with online information about family issues, advocacy, legislation.
http://www.pacer.org

Parents for Residential Reform (PFRR)
MA grassroots organization for parents of children with special needs served in residential settings.
http://www.pfrr.org/

PLUK
Family support center with online topical guides.
http://www.pluk.org/AT1.html

TASH
The Action Starts Here, an international membership association of people with disabilities, their families, other advocates and professionals. The website has topical information and publications.
http://www.tash.org

The Arc
The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community.
http://www.thearc.org

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Resources: Family Issues Family Support and Advocacy

Family Support and Advocacy

Yesodot Information

Resources: Family Issues
Family Support and Advocacy